Siblings Of Autistic Children
First published in 2015.
When I think of Conor and the future I try to think not too far ahead, thinking instead of small steps of progress. When I think of what may lie ahead I feel a lump in my throat, anxiety jumps around inside my stomach as if he were on a trampoline, my heart starts to feel a sort of fragile pain almost like a whispering wind whirling around it, usually at this point my mind supersedes my frail heart helping me to focus on something else more present like what I am doing at that particular instant.
The judgements and attitudes of individuals who do not understand difference, who do welcome individuals like my son Conor who is autistic, causes me so much distress and anxiety. I know I cannot change the world on my own for Conor, but I can try.
When your daughter asks repeatedly when her little brother is going to speak with words, or that she can’t wait until he can so she has someone to talk to, it hurts my heart but also reminds me I can help her to understand that not everyone in the world uses words to communicate.
She has every right to wonder, to want an answer & to be hopeful. I can see how it plays on her mind, she is accepting of what is, but still wonders why and if Conor communicate with words, why he doesn’t go to the same school with her, why her brother is different to her friend’s brothers.
She loves to paint with me in the evening and usually will present me with a beautiful picture of her family telling us how much she loves us. She sees the world with an optimism, I try to instill in each of my children and wish I could reclaim for myself, in moments where I have felt my little ones have been judged negatively.
Hailey sees things simply in a matter of fact sort of way, there is always an answer to any question. She has such an amiable, virtuous character, that I feel proud that I may hopefully have played a small part in raising such an amazing little girl. She wants to be friends with everyone, be kind to everyone, help; me & her family as much as she can.
I have often spoke to her briefly about Conor; being autistic, hoping to help her understand on a surface level what it means for him & her as a sister, trying not to delve too deeply just yet. The day finally arrived, while drawing a new picture of her family, the questions began to tumble out and I knew it was time to answer them as honestly as I could for a 7 year old.
Mammy why did God give Conor Autism? I think he chose Conor to teach us that everyone is different, and we should be nice to everyone no matter. Well I am glad he didn’t give me Autism. Why do you say that Hailey? Well, because I wouldn’t be able to talk & that would be so sad, if no one knew what I wanted to say and they had to guess. Like the other day in Granny’s house Conor was crying because he wanted to tell Granny something but he was just making sounds and no-one knew what he wanted. I was sorry for Conor because he really wanted to tell us something and couldn’t. Well you know Hailey that is why you should be so nice to your brother because he is trying so hard every-day and it is very hard for him so if you can help him you should. I know mammy I always help Conor even when he runs off with my toys and throws them (Conor loves throwing things), I don’t get mad because I know it cheers him up. Well you are being a good big sister minding your brother and letting him play with your toys.
She goes back to coloring her picture, looking deep in thought as she chooses each purposeful color. When will he be able to talk? I can’t wait until he can so I’l finally have someone to talk to. We are not sure when or if he will talk, he will talk when he is ready but it might not be for along time yet. Well sometimes I have dreams about Conor, we are eating crisps and he is telling me stories.It will be nice when he talks so i can hear what he sounds like. You know maybe we could ask Santa to bring him his voice back? Santa won’t be able to bring it, as only Conor can use his voice for words so we just have to wait until he is ready but that was a good idea to think about asking Santa.
She then stays silent for a good 5 minutes while she looks intently on her drawing of her brothers. “I don’t think it’s fair to laugh about people who can’t talk, it is not their fault they can’t talk. When ******* was laughing at school about Conor not being able to talk even though he was 5, I told him how would he like it if when he was five he wasn’t able to talk. Small tears were coming down my face when he said that about Conor when he was laughing but I made them go back inside my eyes. (She was picked on at school by another child just before the summer holidays about Conor having additional needs- I called to the child’s house and spoke to the parents about their son & it was sorted out) I am always so proud of you Hailey, you are such a good big sister and so brave to stick up for Conor. Some people might not understand/like that other people are different, but if we stick up for people like Conor more people will be brave like you and stick up for them too.
At that she presented me with another fabulous family drawing, freshly made with love from the heart & mind of an inspiring 7 year old, a quick squeeze. a kiss and off she runs to her room to put on her Ninja Turtle DVD.
My heart recovers quickly when i think about how brave Hailey is everyday; facing a world where so many still treat children & adults with additional needs as an afterthought. I am hopeful always of the future and that hope grows stronger when I think of this generation of children we are raising full of compassion, empathy & love for the vulnerable in our society.