You will forget me

Special Needs Bonds

Conor and his best friend Hailey

I don’t always have the answer when I should, maybe it is because I am still learning, and always will be as my beautiful little people grow up. There is no “handbook” that tells you the right or the wrong answer to give when the difficult questions come. The questions tumble so easily out of Hailey’s mouth from time to time that I know I should be prepared for them each time, but every time I am caught off guard. I search in the darkness of my mind for the “right” answers, the least painful response to her “wonderings” about Conor and now about Jack. [Read more…]

A Special day at the Menlo

11896183_399276823615491_3749273463660924754_n

Image Source- Special Heroes Ireland

A Special Day at the Menlo Park Hotel

To day I attended a brilliant Special Needs Exhibition organized by Special Heroes Ireland which took place in The Menlo Park Hotel, Galway. Proceeds raised by Special Heroes Ireland will go towards Santa Claus making very special home visits to children and adults with special needs who would love to meet Santa. x

As I have two super cute little boys with Special Needs I wanted to go along to find some new Therapy Tools that could help their language, sensory and fine motor needs. The event did not disappoint! x [Read more…]

Brownies

Brownies [Read more…]

Magic Maleficient

Hailey as Maleficient

Hailey as Maleficient

Halloween has been and gone, we all had sickly tummies after too much sweets and goodies to prove it! It was really nice this year as Baby Jack is older so could take part more so than he could last year. We started off the day early visiting both Granny’s house to Trick or Treat as Halloween is not Conor’s favorite time of year and he can get so wound up with all the noises and lights. So we went early in the day so he could enjoy it more.

Hailey of course had asked many weeks ago if I could make her a Magic Maleficient Costume! I can use a sewing machine but I am far from “professional” lol! So I knew it was going to be either a hit or miss situation. So on the wing of a prayer I got to sewing a black spooky type dress with a hood and also a cloak that left room for wings! The one mistake I made was not making the hood larger as the Character Maleficient has her full head covered in Black.  [Read more…]

Thoughtful

IMG_4299Before I was a mother, before I was a wife, I was me. That sounds strange to read and even stranger to write. What I mean is that before I took on all the roles I have now in my life I started out as me. There is one thing I have always surrounded myself from as far back as I can remember and that is “words”. I love to read, write and learn. I have always found it so easy to learn something if I have an interest in it. I am inspired by learning and more particularly I am inspired by words, quotes, books, poems, novels. My safe haven has always been between the pages of my next good “read”.  [Read more…]

Starting over

Baby Jack

Baby Jack

You never really know what you have lost until you realize that it has gone. The thought that I could have two little boys with special needs, who are not able to speak; still doesn’t seem real to me, but it is. I love them equally, love them just as much as before, maybe a little more because I know what may lie ahead as I have been travelling this road now for almost six years. [Read more…]

Love has no words

Hailey and baby Jack.x

Hailey and baby Jack.x

Love has no words

On the tough days when every thing has gone wrong I just want to hide away. Pull the covers up over my head and not come out until it all magically gets better. Being a Mammy means on those days you put the kettle on, pour another cup of courage and fight another day. Doubt and guilt follow me as often as night turns into day. I could be a better mammy, I could spend more time with each of my little ones,  I should be doing more therapy with the boys, I should be giving more attention to Hailey, I could be telling them more often I love them.

Conor looking out for Baby Jack

Conor looking out for Baby Jack

Hailey always helps that doubt, guilt and fear fade away. Watching Hailey kiss the top of Conor’s head this morning after he bumped it made be feel so at peace. I must be doing something right. I watched her as I stood quietly to the side as she bent down and gave Conor a soft kiss to the top of his head, rubbing his shoulders she said “It’s ok Bubba (her special name she calls Conor), all better now“. He looked back at her with a sad smile and my heart broke a little more. For all the self doubt I have as a mother to my three lovely little people it fades away when I see how happy they can make each other. [Read more…]

Autism knocks on the door

Baby Jack

Baby Jack

It is not often I am speechless (probably all the tea) but this summer I was shocked into silence, stunned actually. It was from something I hadn’t completely ruled out but you always, always hope your worst fear would not come true.It took me the last few months to get my feet back under me, and finally I have.
You see I am very lucky to have 3 gorgeous children; a beautiful girl and two super handsome boys. We have been living with Autism in our house for the last almost 6 years and it has brought many ups and a very many downs as we tried to find our way with it all.
Then we had Jack and we were so so delighted to have another gorgeous baby to hold and to love and to love us back All was well. [Read more…]

My Forever Love

Hailey

 

My Forever Love

Written By Amanda Mc Guinness.

I often look and want to cry,
Wondering how, what and why,
This is not the life I planned for you,
I wonder if you ever feel it too.

I so wanted and wished for you,
Asking god each night to give me; you,
A little girl just for me,
My little best friend, just you and me. [Read more…]

Special Needs Moms need to know

Autism Awareness

♥ You are doing the best you can.

You are doing your best right now and that is enough. When you feel guilty that you are not doing enough for your child, that you could be doing more, know that all special needs moms have felt just as you do right now. You can always do more later, write out what needs to be achieved in a list and tackle it one point at a time, you have so much going on in your life right now caring for your family and your child(ren) with special needs, your best right now is enough.

♥ You are not alone.

We are all here waiting for you. Becoming a special needs parent can be both heartbreaking & overwhelming, just know that you are not alone, there will always be someone who has walked this road before you. There are thousands of special needs parents living in Ireland today and around the world. Social media groups are an excellent source of support/advice/friendship online, Facebook is an excellent online window to such groups. Come find us.

[Read more…]