A Visual Santa Letter

Autism Santa Letter

Free Printable Santa Letter for Christmas

 

With Christmas now just weeks away, many children are busy writing their letters to Santa.x In our house Hailey usually has the job of writing the letter on behalf of her brothers aswell, but this year I wanted to be more proactive and ensure Conor and Jack were also able to “write” their letters too. 

Conor and Jack are both unable to “write” by themselves just yet, but I didn’t want that to be a barrier to them both getting to send their own letters to Santa. So I have created A Visual Santa Letter for them both to send. I have included visuals within the “letter” so they can better understand what the letter is all about.  [Read more…]

Starting School Advice

Special Needs School Advice

With “back to school” now just weeks away, I have been receiving alot of emails requesting “my” advice from, in particular, parents of children starting school or preschool this September. As you may know from reading The Little Puddins Blog, I have two boys with Autism, SPD, and Intellectual Disability, that makes me an expert on “my” children, but not an expert on all children with disability.

I decided for this post instead of giving just my “advice” I would ask other experienced parents on what they thought was the best advice to give. I posted the question over on my Facebook Blog Page and lots of brilliant parents commented, giving their advice to parents of children with special needs starting school/preschool this September. I hope you find their advice helpful and I would love to hear your advice too, so comment below and I’ll add include your advice later in the week when I update this post. [Read more…]

Life is normal now

Normal Now

Jack and Conor

They say that “time is a healer” and I think that maybe that is true. If you told me that 12 months ago; I would have cried with the anger, pain and fear I was trying to overcome at that time. Angry that autism had claimed my youngest son now as well as his big brother, pain that I could of done more for him if I had known sooner and fear that I just wasn’t ever going to be able to do enough to help him. [Read more…]

It is not your fault

It is not your fault It can be bittersweet sometimes watching the boys as they play happily on their own. Peeping through Conor’s bedroom door I watch as he happily throws his Angry Bird Teddies up, up, up in to the imagined sky I think he sees above his head. I find myself just then swallowing down a deep sorrowful pain I can feel rising in my chest that always seems to start in the pit of my stomach somehow. It feels sort of like a balloon expanding but pushing up, up, up into the sky waiting to break free just like Conor’s teddies but it is the most sorrowful and painful feeling I have ever experienced in my life. It comes and goes and can catch you off guard sometimes just like one of Conor’s “flying” Angry Bird teddies which  have been known to “ping” you on the head when you pass Conor’s bedroom if his door is open. His teddies much like that sorrowful feeling can catch you by surprize and steal the peace you thought you had in your heart.x

Jack just like his big brother Conor loves to play on his own, I know he loves me but for the most part he likes to be on his own, playing in his world, lining up his toy cars, listening to Bingo the Dog or Wheels on the Bus. Sometimes I think if I hear “The Wheels on the Bus go round and round” one more time my heart could burst with the pain I feel inside. Not because I can’t bare to listen to it the million times a day Jack has it on repeat but because I know that in some way on some level that is how Jack copes in our world. Having his songs on repeat all day long reminds me that just like me he is doing his best to cope, to live his “normal” in our world.x

It is not your fault [Read more…]

Conors fight

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Conor’s Fight to find his Voice.

I think one of the absolute hardest parts about Autism for me as a Mum is not hearing my children speak, not hearing their voices, not hearing the “I love you”s I so want to hear. That is by far the hardest part. The thought that Conor and now Jack have all these thoughts inside their heads and they can’t “express” them, breaks my heart.

Over the years we have tried everything to help Conor, we have driven around the country bringing him to Speech Therapists, tried all the ways you can imagine and it just didn’t work. Over the Summer a very close friend of mine told me about an amazing Speech Therapist she had brought her beautiful little girl to. She had helped her little girl find her voice again. Her little lady was almost the same age as Conor so I knew how she felt for all those years wishing her little girl could speak, and now she was starting to!

She passed me the Speech Therapist’s number that her little lady went to and I arranged an appointment. It was by far the best thing I have ever done for Conor. Every week since that fateful day I made that first phone call, Conor goes to Speech Therapy to his amazing Speech Therapist Roisin in the Speech Centre in Castlebar and every week he makes more progress. [Read more…]

Living inside the Autism Bubble

Autism Bubble

My gorgeous Jack.x

Peering up into my eyes, my lovely Jack smiles and I smile back as we sit together while all are sleep. He turns away from me now and rubs his little face with his favorite cloth as the light of the fire keeps us company. It’s almost 3am and we are in darkness except for the glow of the fire keeping us warm. Kissing Jack’s gorgeous little head I rock him over and back in my arms singing the alphabet song again, again, again. I would so love to know why the letters of the alphabet make him feel so safe, maybe he will tell me someday I think.x

It is always in the dark of night that I wonder most what it must be like to live in the Autism Bubble, in their world, to wake up one morning to the way they think, see and feel the world. Conor and Jack both live in “our” world but oh what I would do to live in theirs. Just for a moment, to see. feel and be just like them, just so I could really understand them, so I could “really” help them.x [Read more…]

We are back on the Autism Road

Back on the Autism Road

Jack is finding his way in our world.x

 

Starting Over

This week a new chapter in Jack’s short life has begun. A step in the right direction for him and us as a family but in another way it is sort of bittersweet. I am so glad for him that Conor’s amazing Resource Worker “Mary” is back in our lives and is here to help Jack just as she helped Conor starting out all those years ago yet it makes my heart so sort of feel heavy for a moment. I didn’t think we would ever be back here again but here we are.x  [Read more…]

When Santa can’t help

1510946_10152551828518298_464121583_nI think the song goes “it’s the most wonderful time of the year” and it is, mostly.

I have always loved Christmas, loved Santa, loved the super cheesy but festive Christmas songs you hear in all the shops in November and December. It really can be the most wonderful time of the year, but it can catch you off guard too in the most unexpected way. Just when you are busy rushing around like everyone else in the toy shops, in the Department stores, standing in the line of children queuing up to see the most famous man in the world who happens to wear a red suit, it will just hit you. [Read more…]

Book Shelf

9780252080319I have been asked many times what books I have read that I have found most useful. Over the years I have read so many, that I can’t remember them all until I find myself reading a “new” book only to realize I had bought and read the same one many years ago lol!x

I am incredibly lucky as I have many lovely friends in the Special Needs Community who are always at hand to recommend brilliant books that are worth paying for and will be on your book shelf for years to come when you need them. I have decided to write this post for new parents of children diagnosed as having Autism or SPD in particular. As both my boys have Autism and SPD this post will focus on those topics for books but will also include some books that fall under the umbrella term “Special Needs”, so you may just find some good books for your own book shelf. [Read more…]

Little Boy Lost

The photo that breaks my heart.xxxx
The photo that breaks my heart.xxxx

My Little Boy Lost

When I see Conor, I only see him, not Autism, not SPD, not anything else, just him. I see his lovely eyes, his sweet smile, I hear his gentle laugh, I feel the softness in his skin when he touches my face. I see him when he flaps his hands, I see him when he twirls around, I hear him when he screeches when he is happy, I hold him tight when he is glad, hug him a little tighter when he is sad.x I listen every hour of every day for his voice to find it’s way back to me. I love him now and forever more, come what may I will love him long after my dying day.xx

I hope when the day comes that I am gone from this world, my lovely Conor has grown up to be the handsome, kind young man I know he is meant to be. I hope by then his voice has found it’s way back, that he can tell all the world how he feels. I hope he will remember how much I have loved him and will always love him. I hope he will always remember the good times, the fun times we have had and above all I hope he will forget the sad. [Read more…]