Face the fear and do it anyway

face the fear and do it anyway

Face the fear and do it anyway.x

Sometimes I wish I could go back in time to when I was young; somehow, back then things always seemed to turn out alright.x I remember being small and afraid of the dark, afraid of monsters under my bed, or unknown noises in the dark. Back then all it took was for my dad to leave the hall light on for me at night or my Mum to check under my bed, to give me the all clear so I knew I was safe. I remember that feeling of relief that everything was going to be alright. No matter what the problem was if Mum or Dad said it would be okay, then I knew it would be.x

I sometimes find myself wishing to be that young again; when that was all it took for me to know things would turn out alright in the end somehow. Over the last few months I have found myself struggling with the weight of the responsibility of what now rests on my shoulders, the reality of having two little boys who are unable to speak, who have Autism and SPD, Developmental Delay and Intellectual Disability, who rely solely on me to survive now and in the future. I think every parent feels that way from time to time but I feel it more acutely with Conor and Jack then I do with Hailey, as they rely on me so completely all of the time, it can be so breathtakingly overwhelming.x [Read more…]

Orchard Toys make Learning Fun

Orchard Toys ReviewEvery family has their “go-to” toys, family favorites, much loved, worn out games, puzzles and toys that will hold a treasured place in the memories of little hearts, forever. When you live in a special needs family; you really learn the value of time spent together, I don’t mean physically in the same place but that real sense of “together”, connecting on a level that spoken words can’t really describe. [Read more…]

Conors fight

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Conor’s Fight to find his Voice.

I think one of the absolute hardest parts about Autism for me as a Mum is not hearing my children speak, not hearing their voices, not hearing the “I love you”s I so want to hear. That is by far the hardest part. The thought that Conor and now Jack have all these thoughts inside their heads and they can’t “express” them, breaks my heart.

Over the years we have tried everything to help Conor, we have driven around the country bringing him to Speech Therapists, tried all the ways you can imagine and it just didn’t work. Over the Summer a very close friend of mine told me about an amazing Speech Therapist she had brought her beautiful little girl to. She had helped her little girl find her voice again. Her little lady was almost the same age as Conor so I knew how she felt for all those years wishing her little girl could speak, and now she was starting to!

She passed me the Speech Therapist’s number that her little lady went to and I arranged an appointment. It was by far the best thing I have ever done for Conor. Every week since that fateful day I made that first phone call, Conor goes to Speech Therapy to his amazing Speech Therapist Roisin in the Speech Centre in Castlebar and every week he makes more progress. [Read more…]

Happy Printing

BeFunky Collage [Read more…]

The Friday Freebie Catch Up

Behavior Downloads

Behavior Downloads

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Living inside the Autism Bubble

Autism Bubble

My gorgeous Jack.x

Peering up into my eyes, my lovely Jack smiles and I smile back as we sit together while all are sleep. He turns away from me now and rubs his little face with his favorite cloth as the light of the fire keeps us company. It’s almost 3am and we are in darkness except for the glow of the fire keeping us warm. Kissing Jack’s gorgeous little head I rock him over and back in my arms singing the alphabet song again, again, again. I would so love to know why the letters of the alphabet make him feel so safe, maybe he will tell me someday I think.x

It is always in the dark of night that I wonder most what it must be like to live in the Autism Bubble, in their world, to wake up one morning to the way they think, see and feel the world. Conor and Jack both live in “our” world but oh what I would do to live in theirs. Just for a moment, to see. feel and be just like them, just so I could really understand them, so I could “really” help them.x [Read more…]

We are back on the Autism Road

Back on the Autism Road

Jack is finding his way in our world.x

 

Starting Over

This week a new chapter in Jack’s short life has begun. A step in the right direction for him and us as a family but in another way it is sort of bittersweet. I am so glad for him that Conor’s amazing Resource Worker “Mary” is back in our lives and is here to help Jack just as she helped Conor starting out all those years ago yet it makes my heart so sort of feel heavy for a moment. I didn’t think we would ever be back here again but here we are.x  [Read more…]

What I learned this past year

Jack "helping" tidy the Christmas Tree last Christmas.x

Jack “helping” tidy the Christmas Tree last Christmas.x

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Christmas Surprises

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With Christmas just a few short days away (Yeeey!!), we were incredibly lucky when the brilliant people of Orchard Toys sent us on their fab festive game “Christmas Surprises”. As you will know from following my Blog we are massive fans of Orchard Toys as they are one of the best toy makers of games for children of all abilities. So of course we were delighted to be sent on another fab game to play with.  [Read more…]

When Santa can’t help

1510946_10152551828518298_464121583_nI think the song goes “it’s the most wonderful time of the year” and it is, mostly.

I have always loved Christmas, loved Santa, loved the super cheesy but festive Christmas songs you hear in all the shops in November and December. It really can be the most wonderful time of the year, but it can catch you off guard too in the most unexpected way. Just when you are busy rushing around like everyone else in the toy shops, in the Department stores, standing in the line of children queuing up to see the most famous man in the world who happens to wear a red suit, it will just hit you. [Read more…]